Most of my professional life has involved working with children and young people (CYP) with profound and multiple learning disabilities (PMLD). My other main professional interest has always been assessment. I am not going to get overly detailed on whether it is formative or summative, just a broad notion of assessment. It was the focus of my MA dissertation on Socio-Cultural Approaches to Assessment for Learners with PMLD. I came to this via a disillusionment with the insistence that we must apply numbers to assessment approaches in order to measure progress. We jumped through hoops with P Scales (2014); their commercial offspring; Progression Guidance (2009) and the bizarre notion that all students (with SEND) will make the same amount of progress over the same time frame i.e. two levels of progress over a key stage. I happened to discover the Narrative Assessment Framework from New Zealand on a google search and decided that I wanted this to be the focus of my MA research.
It was very refreshing to use narrative as a means to assess progress. Using Carr’s (2001) learning story model I documented a number of events which showed how a student in my class engaged with people, objects and the environment. I used various ways to demonstrate how the learning stories captured progress by linking to their outcomes within their Education Health and Care Plan, identifying which curriculum outcomes they reflected and which specific learning intentions the learning stories exemplified. I involved those who worked with the student, the focus of my study, to read the learning stories and comment on the assessment I made using them. It was not until I sat down to analyse my data that I recognised something missing in the learning stories and subsequent interviews, which was not acknowledged in the learning process. I will return to this missing element later.
CYP with PMLD may have all or a combination of severe physical impairments, medical conditions and sensory impairments as well as being nonverbal. Assessment models, even those designed for CYP and PMLD, follow two specific learning theories, namely behaviourism and cognitivism (Simmons and Watson 2014). Simmons and Watson (2014) highlight behaviourist approaches including preferred stimuli assessments, use of microswitches to develop contingency responses and consideration of behaviour alert states. Cognitivist approaches include Intensive Interaction (Nind and Hewett 1994) and responsive environments (Ware 2003). I have spent many years as a classroom teacher and a senior leader in attempting to show how CYP with PMLD have made progress using these approaches. Despite varying amounts of success, my inability to account for learning in this way has led me to believe these approaches fail to fully acknowledge learning in the way I observed. I accept that learning will be made in small steps, although I continue to question who selects these small steps and how we know they are meaningful to the CYP, when we are reliant on the same developmental theories. Simmons et al (2008) highlight this in their research, referring to it as a ‘pre-x symptomology’. They argue that the focus of PMLD studies has tended to be centred around cognitive psychology and behaviourism and it has ignored the lived experiences of CYP with PMLD.
There is much in the Rochford Review (2016) I welcome, particularly for its honesty and integrity. Where I disagree is with the decision that for those who do not follow a pre-determined route to learning, we should focus on cognition and learning. I do not feel compartmentalising learning for CYP with PMLD works and by doing this leads to a misunderstanding of the learning process. Some argue the deterministic approach to learning leads to further exclusion and discrimination (Devecchi 2013). Furthermore, there is little mention of PMLD in the SEND Code of Practice (2015 DfE/DoH), in fact, Colley (2018) highlights just two occasions and neither of these relate to learning. In addition, the SEND CoP (2015 DfE/DoH) does not cohere with the Rochford Review (2016) in that the review never mentions target setting or targets whereas the SEND CoP (2015 DfE/DoH) very much advocates the use of SMART (specific, measurable, achievable, realistic, timed) targets. My heart sinks when I see different assessment schemas that attempt to break down developmental milestones into even tinier chunks. I am therefore exploring an alternative approach to assessment for CYP with PMLD as part of my PhD study.
As mentioned, there was a missing component to assessment when I analysed the data for my MA dissertation. The missing element was the body. For a CYP with PMLD the body is the ‘vehicle for learning’. It cannot be compartmentalised into categories. It makes me think about the holistic nature of learning for CYP with PMLD. In my view it isn’t recognised in assessment models currently used in classrooms (e.g. Routes for Learning (WAG 2006) or Engagement Profile Scale (Carpenter et al 2015). Depending on whether you believe CYP with PMLD should follow a National Curriculum or a specialist curriculum there is still the tendency to focus on compartmentation in some way (formal curriculum by subject or Specialist curriculum by Cognition and Communication.) You don’t have to search too hard to find curriculum on (specialist) school websites to find models that adhere to one or the other of these approaches. Aoki (2004) calls this approach to the curriculum as curriculum-as-plan, and to use his words “it is imbued with the planners’ orientations to the world” (p.257). As an alternative to this Aoki (2004) proposes we consider the ‘lived curriculum’. Aoki (2004) posits that a teacher understands the ‘uniqueness’ of the students they teach as daily interactions unfold. The curriculum-as-plan subverts the lived curriculum as it is created for a generic pupil population, veiling the uniqueness of the individual. The multiplicity of a lived curriculum challenges the formalcurriculum-as-planand allows the teacher to create a ‘retextured landscape’ (Aoki 2004 P.258).
In seeking a way to re-imagine assessment for CYP with PMLD I had to find a different philosophy that may help me understand the process of learningin a different way. Bear in mind I am at the beginning of my research and I am making no claims just exploring other possibilities. In my search I discovered the work of the philosopher Merleau-Ponty, through the research of Simmons and Watson (2014), and decided to explore this further. It led to the discovery of the theory of embodiment and the work of Gallagher, Zahavi, Eccleston, Rocha and Fuchs. I realised there was a gap in the field of PMLD, in that there are no considerations of a phenomenological approach to assessment. And so, my journey begins to explore how the body becomes a vehicle for learning and the implications for pedagogy and curriculum, specifically for CYP with PMLD. My blog title was inspired by Aoki’s view of a ‘retextured landscape’. My blog title ‘Learning Architexture’ aims to convey the complex nature of learning, its multiplicities and directions as well as its sensuality, particularly as experienced through the body.
I look forward to sharing my insights as my study unfolds.
References
Carpenter. B, Egerton. J, Cockbill. B, Bloom. T, Fotheringham. J, Rawson, H and Thistlethwaite. J, (2015) Engaging Learners with Complex Learning Difficulties and Disabilities: A resource for teachers and teaching assistants.Routledge
Carr. M, (2001)Assessment in Early Childhood Settings: Learning Stories. SAGE
Colley, A. (2018 To what extent have learners with severe, profound and multiple learning difficulties been excluded from the policy and practice of inclusive education?International Journal of Inclusive Education
DCSF (2009) Progression guidance: improving data to raise attainment and maximise the progress of learners with special educational needs, learning difficulties and disabilitiesCrown Copyright
Department for Education (2015) Special educational needs and disability code of practice:(0 to 25 years) Statutory guidance for organisations which work with and support children and young people who have special educational needs or disabilities Crown Copyright
DfE (2014) P scales: attainment targets for pupils with SEND Crown Publication
Devecchi, C. (2013) Beyond development: applying the human development paradigm to identifying children with special needs and disabilities. Paper presented to: British Educational Research Association (BERA) Annual Conference, University of Sussex
Nind, M. and Hewett, D. (1994) Access to Communication: Developing the Basics of Communication with People with Severe Learning Difficulties through Intensive InteractionLondon: David Fulton
Pinar, W.F and Irwin, R.L, Ed. (2004) Curriculum in a New Key: The Collected Works of Ted T. AokiRoutledge
Simmons, B., Blackmore, T., & Bayliss, P. (2008). Postmodern synergistic knowledge creation: Extending the boundaries of disability studies.Disability and Society, 23(7), 733-745. Simmons. B, and Watson, D. (2014) The PMLD Ambiguity: Articulating the Life-Worlds of Children with Profound and Multiple Learning DifficultiesKARNAC
The Rochford Review: Final Report (2016)Review of assessment for pupils working below the standard of the national curriculum tests. Crown
Ware, J. (2003) Creating a responsive environment for people with profound and multiple learning difficulties(2nd ed.) London: David Fulton